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Tuesday 11 June 2019

T + 2275. Yay...oh

04/05/2019

So as some of you will have gathered from my Facebook page, my stay in rehab at Rye was not long lived, about 48 hours in all. As I may have mentioned I was worried about pain control for my joints which was for the most part things blunted to level that allowed me to be mobile on crutches.
This was the only vaguely humorous
picture I could find of someone on crutches

On first day at Rye I was zipping up and down the hallway on crutches and feeling really good about it. The physio was pleased as well and reckoned that it would only take another two weeks (at present rate of improvement) for me to be ready to go home. It was that night that things changed, by about 11pm the pain in my joints had spread to my hands and fingers even with a belly full of painkillers and, if anything, had come back stronger than before. I also had a temperature spike of 38 degrees and since I have a history of this alarm bells started ringing.

The nurses at Rye contacted KCH who, to their credit and my deep disappointment advised them to ship me back post haste. So I left Rye at 3.30am, arriving at Kings A&E at 5.30am to be booked in. Spent a long painful day on a trolley behind a curtain, being tended to by a nurse who was obviously crazily busy. By luck a bed became free on the cardiac ward at about 8pm that night where I stayed until 10am the next morning before being shipped up to my old ward the Derek Mitchell Unit to the same bastard cell of a room that I was in before. If anybody reading this ends up in here it’s poxy room no 15 where I spent the greater part of three and a half bloody months plus however long this time around.

This dear reader brings you pretty much up to date. I have to say Im mightily pissed off but not surprised. I think the last consultant I had here was a bit more concerned with getting me out door rather thanlistening to and addressing my concerns about the pain in my joints. After all, the baddies had all been sorted - cellulitis? - gone, pneumonia - departed! sepsis - absent. So why keep me in? Well they found out. I appreciate that places in rehab have to be grabbed when they become available but really...?

I have been here for two days now and it’s evident to me that Kings are determined to get me sorted out and back in rehab ASAP. Yesterday I had visits from specialist consultants in Rheumatology, Dermatology and Haematology all of whom have gone away to ‘have a think”. I’ve been started on IV antibiotics which appear to be working as I woke up 50% pain free today and able to move around freely with just a bit of a hobble -  bonus! I must say I have a lot of confidence in my new Haem.consultant .I’ve met this person before as an out-patient and I know them to be a good listener and someone who follows up and does something that they said they would.

An actual picture of my new consultant being attentive (honest)
Despite being back in shitty little room 15 I’m in a positive frame of mind because I can tell Kings are throwing everything at this in order to get me well again. I think their might be a few red faces at next Thursday’s meeting when all the consultants sit together to discuss patients’ files and they get to the one where a patient was discharged for nearly 48 hours.
PS I think hoping back to Rye after this clears up is in the stars for me because I’ve left my washing kit and electric shaver kit there.

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