It looks like I'm going to be blogging by default because there is bollock all else to do at 3am when you're wide awake and craving sleep. Health has been pretty Ok since leaving Kings, appetite good - back up to 9 stone seven pounds - mouth ulcers a bit of a bitch and nagging cough but otherwise totally livable with. What really shocked me is how frail the rest of me has become - going up all the flights of stairs in our house leaves me puffing and knackered with wobbly legs, so some work required in this area I feel. I'm doing the dog walk in the mornings now and set a fairly sedate pace - no doubt keeping his up will help.
Some meds are being stepped down, Prednisolone is now 15mg per day rather than 60mg pre-Kings and MMF down to 2g from 3g. I have of course given Zopiclone the big E, once I got as far as 11mg with no effect I knew it was time to stop and this is why I up doing this - sleeplessnessnesssnesss.
I've had some fairly lengthy chats with Jeannette on how to work out coping strategies for being out and about again. She gets very concerned that I try to push myself to do too much too soon and if I'm totally honest she's right, I very much feel the need to be contributing but the flipside here is that it makes me tired and makes me ratty.
At the weekend with son Milo pushing my buttons left right and centre and doing a dance all over my nerves I could feel the old grouchy me starting to emerge very quickly as could Jeannette, so after a long discussion on Saturday night we worked it out that if I get in this state I just tag her in like a wrestler and get the fuck out of dodge to get my head down for 30 minutes and it works brilliantly, Milo doesn't get a telling off I emerge in a sweet mood and we get on with the next 3 hours 'til we do it again.
My challenge for the next 10 days or so will be to hold thing together on 3 hours sleep a night (and daytime catnaps) until I can normalise my patterns post Zopiclone.
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